No, I haven't been posting the past few days. Even my therapist got upset at me because I've not been writing.
When you're in a funk, you can't write. You can't do anything but sit and spin your wheels which just causes more frustration over how you're not going anywhere in your life.
I can end up waiting up to six months for someone to do something about my ERO/EEOC claim because that's the law. Even though I now can't work doing the job I had because some idiot decided he wanted to make the rules instead of following the law, I have to wait for the legal process to take its course.
I've applied for so many jobs in the local area I've completely lost count. And have I heard anything back? Nope. Or when I go somewhere thinking I might like to apply and I can already see in their faces the fact that they're not thrilled over my 86-pound constant companion, I don't bother. Besides, I'd rather have her with me everyday than the crap that can happen at most places.
Got news about a family member who's going through some tough times. I want to be able to help and give support but I also don't want to be intrusive. I remember when I was in a somewhat similar situation and the last thing I wanted was pity from anyone and I usually got a lot of unsolicited advice that didn't do me much good. I don't want to be one of those kinds of people.
One of my friends was to get married tomorrow and her fiancé left her today. She and her young daughter who had opened their home and lives to him and his excuse is because his biological son is afraid of having to make new friends when he moves. What a jerk.
I'm trying to help celebrate Youngest Son's upcoming birthday. I went to the movies with Husband, Youngest Son, and four of his friends. They had a great time and I was really glad they could go. I just feel like I wish we could have done more.
Husband and Youngest Son are currently in the basement doing laundry and playing a computer game. I sincerely appreciate that they're doing the laundry because that means I don't have to do it and I don't have to go outside to get to the basement. It's not a "finished" basement like many people have. It has a floor and walls, but there's no way to access it from inside the house. And with the heat the way it is, I'm not in the mood to go outside much.
And, yes, Depressive is trying to get me to post but I'm so sick and tired of being sick and tired that it's just been easier to do nothing and sleep instead of trying to come up with something to write and crying while I feel awful.
Maybe I'll get back on a schedule. Maybe I'll stop writing completely. I've already told my therapist that I'm not writing anymore at the moment about my past because I'm getting to big areas that I don't really remember. There are a lot of blank spaces in my memory -- some last days, some last years -- and whatever is hidden inside them I do not want to bring back to the surface. It wouldn't be healing; it would be reopening the wounds that my brain has found a way to deal with that doesn't cause me any additional damage. I remember trying to deal with them and it didn't work then. Time does not heal all wounds.
A place to ramble and maybe make some sense about a thing or two.
Showing posts with label sick. Show all posts
Showing posts with label sick. Show all posts
Saturday, June 23, 2012
Tuesday, June 12, 2012
Stupid flippin' migraines in my stupid flippin' head again
Gah!!! This is driving me crazy!!! But, I'm still posting tonight!!!
I know there's nothing wrong 'cause I just had an MRI a little over a month ago and just the brain is up there like it's supposed to be. But all weekend I've been having migraines & thought I'd finally kicked it.
Nope. Tonight just after I watched a show I wanted to see on television the stupid headache came right back.
Another night with ice on my head. And a washcloth on my eyes 'cause they're hurting too. Maybe I should just ask the rest of the body to start adding their aches and pains to the pile tonight. Get it all over with in one shot.
I know there's nothing wrong 'cause I just had an MRI a little over a month ago and just the brain is up there like it's supposed to be. But all weekend I've been having migraines & thought I'd finally kicked it.
Nope. Tonight just after I watched a show I wanted to see on television the stupid headache came right back.
Another night with ice on my head. And a washcloth on my eyes 'cause they're hurting too. Maybe I should just ask the rest of the body to start adding their aches and pains to the pile tonight. Get it all over with in one shot.
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Monday, June 11, 2012
Missed yesterday
Yes, the streak has been broken. I did not post anything yesterday. My head decided that a migraine would be much more fun than being able to spend time with my family and kept me in bed all day. Since I don't type well (or coherently) when my head is screaming at me, I took the day to rest.
I'm not proud or anything like that. Actually, it's been driving me crazy that I didn't post. But, I decided to do something for myself and try to get better.
Would have worked, too, if a large weather front hadn't moved into our area and dumped a big storm on us. My poor American flag that hangs on the front of the house was targeted by the wild winds and shoved to the ground before I could get to it. Fortunately, Youngest Son went out during a lull in the wind and rain and retrieved it for me. Now I've gotta fix (or replace) the bracket on the front of the house. And my poor flowers that I planted earlier this spring but could never remember what they were until they bloomed and I sent pictures to friends have been beaten-down as well. No major storm damages here. Not even minor storm damages here. But we'll just say that flags, flowers, shovels, rakes, and other items left in the yard were fair game for the wind and bits of hail.
And my headache is back again. I saw a thing today that said the "migraine rating" was going to be low. Not sure how they figure that but it's obviously not getting feeds from my head. Time for more ice and a nice nap (as if I need another). *sigh*
I'm not proud or anything like that. Actually, it's been driving me crazy that I didn't post. But, I decided to do something for myself and try to get better.
Would have worked, too, if a large weather front hadn't moved into our area and dumped a big storm on us. My poor American flag that hangs on the front of the house was targeted by the wild winds and shoved to the ground before I could get to it. Fortunately, Youngest Son went out during a lull in the wind and rain and retrieved it for me. Now I've gotta fix (or replace) the bracket on the front of the house. And my poor flowers that I planted earlier this spring but could never remember what they were until they bloomed and I sent pictures to friends have been beaten-down as well. No major storm damages here. Not even minor storm damages here. But we'll just say that flags, flowers, shovels, rakes, and other items left in the yard were fair game for the wind and bits of hail.
And my headache is back again. I saw a thing today that said the "migraine rating" was going to be low. Not sure how they figure that but it's obviously not getting feeds from my head. Time for more ice and a nice nap (as if I need another). *sigh*
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Saturday, June 9, 2012
Almost missed today
Got up at 5 a.m. to take my medication as usual. Felt really sleepy and did doze for a few moments on the loveseat. Made the decision to go back to bed after Husband and Youngest Son had gotten up and started preparing to go out to yard sales and a big storage unit auction.
Slept until noon. Not incredibly unusual when I'm not feeling well and didn't go to bed on time the night before. Stayed up late with Husband watching silly movies and talking. It was worth it.
Ate a little lunch and was convinced by Husband and Youngest Son to go back to bed because I was feeling tired. Did so and said I'd sleep for about an hour.
It's now 6:30 p.m. and I'm finally awake. What the hell happened to me? I don't feel outrageously ill. A little warm but that could just be my own personal global warming at work, too.
Glad I woke myself up 'cause the other two would have let me keep sleeping. I know they mean well but if I sleep too much in the daytime I can't sleep during the night and then I get my days and nights mixed up, just like a baby can. And it happens too easily because of my medication, too. I don't need that right now.
So, I hope nothing really earth-shattering happened today because I completely missed it. And my brain and eyes are already telling me I should be back in bed.
*Yawn* Maybe tomorrow's post will be worth reading....
Slept until noon. Not incredibly unusual when I'm not feeling well and didn't go to bed on time the night before. Stayed up late with Husband watching silly movies and talking. It was worth it.
Ate a little lunch and was convinced by Husband and Youngest Son to go back to bed because I was feeling tired. Did so and said I'd sleep for about an hour.
It's now 6:30 p.m. and I'm finally awake. What the hell happened to me? I don't feel outrageously ill. A little warm but that could just be my own personal global warming at work, too.
Glad I woke myself up 'cause the other two would have let me keep sleeping. I know they mean well but if I sleep too much in the daytime I can't sleep during the night and then I get my days and nights mixed up, just like a baby can. And it happens too easily because of my medication, too. I don't need that right now.
So, I hope nothing really earth-shattering happened today because I completely missed it. And my brain and eyes are already telling me I should be back in bed.
*Yawn* Maybe tomorrow's post will be worth reading....
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Tuesday, May 8, 2012
Could today get any worse?
Yes. Yes it could.
Thank you for reading.
Thank you for reading.
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Sunday, April 29, 2012
Stupid not-feeling-well kind of day
I hate it when I wake up to crummy weather. I hate it even more when from out of nowhere I have a sore throat, horrible headache, and crummy weather. Add a low-grade fever and you've got a great snapshot of me today.
I do have to give a big "THANK YOU!" to Husband and Youngest Son for straightening up the house and running errands while I was in my medically-induced semi-coma this morning. Husband and I thought we could stay up late on Friday night like we did when we were younger while Youngest Son was at his friend's sleepover. Both of us are feeling the ill effects of trying to be "young" again today. And, yes, the evil couch has been taking its turns on the guys -- each of them having a moment or two to drift off to sleep. I've been staying on the loveseat but the curse is beginning to spread.
Anyway, EPIX is showing Iron Man 2 at the moment. It will be followed by Thor (which Youngest Son hasn't seen yet) and then the evening will be capped-off by Captain America. Yes, we're getting our Avengers prepping done tonight.
So, back to the living room and my attempts at keeping my own personal global warming in check. It's not terribly warm or humid but I feel like I'm in a sauna. Iced tea, anyone?
I do have to give a big "THANK YOU!" to Husband and Youngest Son for straightening up the house and running errands while I was in my medically-induced semi-coma this morning. Husband and I thought we could stay up late on Friday night like we did when we were younger while Youngest Son was at his friend's sleepover. Both of us are feeling the ill effects of trying to be "young" again today. And, yes, the evil couch has been taking its turns on the guys -- each of them having a moment or two to drift off to sleep. I've been staying on the loveseat but the curse is beginning to spread.
Anyway, EPIX is showing Iron Man 2 at the moment. It will be followed by Thor (which Youngest Son hasn't seen yet) and then the evening will be capped-off by Captain America. Yes, we're getting our Avengers prepping done tonight.
So, back to the living room and my attempts at keeping my own personal global warming in check. It's not terribly warm or humid but I feel like I'm in a sauna. Iced tea, anyone?
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Wednesday, April 11, 2012
Migraine sucks
I've been battling a migraine all day. Just woke up from a nap and realized that I only had 3 hours left to get something posted for today.
This is it. It's not much but it's a post.
Thank you for your support.
This is it. It's not much but it's a post.
Thank you for your support.
Sunday, March 11, 2012
Daily post for 3/11/12
Okay. I'm upright. I can type. I feel like death warmed-over, but since I can post that's what I'm doing. I don't have a topic. I've spent the majority of the day feeling nauseous and my chest hurting. I'm pretty sure it's just stress over the play this week as well as my doctor appointment on Friday. Husband and Youngest Son are taking care of me and I appreciate it greatly. And now, I'm going to lay down again.
Friday, March 9, 2012
I hate my head today
Okay....quick post because I said that if I could be upright and use the computer that I'd have to post each day. Well, I'm upright. I think I'm using the computer correctly. But my head is screaming at me today.
Yup, it's a migraine day.
I wouldn't even be up on the computer if the ophthalmologist's office hadn't called to schedule my ERG and MRI for next week. Actually, when they heard I was having a migraine they said they wish they'd been able to do one now. Too bad for them. My head and I are going back to lay down with ice on it to try to get rid of this.
So, there's the post for today. Hope you liked it. I'm not even sure what it says of if any is spelled correctly. I'm just trying to check-off my "duty" to post today.
Yup, it's a migraine day.
I wouldn't even be up on the computer if the ophthalmologist's office hadn't called to schedule my ERG and MRI for next week. Actually, when they heard I was having a migraine they said they wish they'd been able to do one now. Too bad for them. My head and I are going back to lay down with ice on it to try to get rid of this.
So, there's the post for today. Hope you liked it. I'm not even sure what it says of if any is spelled correctly. I'm just trying to check-off my "duty" to post today.
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Thursday, March 8, 2012
Same info, different day - The continuing rant
Well, now that my eyes are working again I can get back to the rant I so wanted to start yesterday but had problems seeing my own fingers, much less the keyboard or the monitor.
Let's catch everyone up in the ongoing saga. A few posts back I related the story of what's been happening recently regarding my vision and the lack thereof. I've seen my optometrist; been referred to a glaucoma specialist; been referred to a retinal specialist; have had multiple versions of two different tests taken at each appointment; and was finally being referred to a neuro-ophthalmologist at a large, prestigious college/hospital across the state from me in order to determine what in the heck is happening. Yesterday, Husband and I drove three hours so I could have the scans and exams needed to identify the problem. I'd been advised that it would take a minimum of three hours for everything and readied myself for being shoved into large machines to determine what, if anything, is in there with my eyes and my brain that could be causing the problem.
After arriving at the doctor's office, I was quickly ushered back to a room where a technician asked me a lot of questions about my past medical history and asked me to read letters on the eye chart with my glasses on because my new prescription isn't correcting me to 20/20 (which is what got this whole thing started). She then had me stare at a notepad with a grid on it and asked me to describe what the lines looked like. With one eye I could only see half of the grid and with the other it looked like the lines were wavy and my brain was trying to make sense of it and I started seeing boxes "popping-up" from the page. She looked at me and scribbled notes on her paper. She gave me a color-vision test, which I'm pretty sure I passed easily other than perhaps mistaking a "6" for an "8" because those dots are so small. She asked me more questions, dilated my eyes, and checked the pressure inside of them. It was normal, as I could have told her. In fact, it was lower than it's been in the past few exams.
Then, and here's where I started to get irritated, she asked me why I was there. I told her it was because I was referred by a retinal specialist who said he couldn't help me because a glaucoma specialist said I didn't have glaucoma and that I should see said retinal specialist and that his office was to have emailed my files to this doctor who is part of the same practice and if they needed the files they could go down the hallway to get them. She nodded and wrote more information down on her paper and finally looked in the computer and found the notes from the retinal specialist. She asked me to go out into the smaller waiting room and wait for the doctor.
Celeste was with me (of course) and we made our way to a small seating area to wait. Upon arriving at the seating area, a large African-American woman began to jump up-and-down and grab everything she owned and kept repeating, "It's a dog! It's a dog!" Great....the last thing I needed....someone to cause a scene because my service dog is with me and they don't like them. I calmly replied to the lady that, yes, she is a dog but that she's a trained service dog and would not bother her. The woman continued to try to find a seat -- any seat -- near where her stuff was but not close to us. She nearly sat on two other ladies patiently waiting their turn or for someone who was being seen. She continued to protest loudly that she didn't like dogs and that there was a dog near her and she didn't like it. I had already scanned the room with what vision I had after my eyes were fully dilated and saw no other vacant seats except the one I chose which also gave Celeste a small area to lay down so that should would be out of the main flow of traffic. I sat down and said, in as polite of a voice as I could muster by this time, that Celeste would not come near her and would stay under my seat by my feet. This did nothing to appease the woman who began to tell me that I couldn't sit with the dog and continued to make a scene. Finally, and I know I shouldn't have, I replied, "Look! If you'd sit down and shut up, she wouldn't pay any attention to you because she is trained to keep her focus on me! Your tantrum is actually putting me in danger because she thinks you could be a threat and is now not paying attention to me as she is supposed to. Be quiet and don't look at her!" The other ladies in the seating area giggled under their breath but I know it wasn't the most polite thing to do. The woman sat down and tried to become one with the arm of the chair farthest from us and Celeste quickly crossed her front paws and put her head down to rest.
The doctor soon called me to come back and be seen and Celeste and I left the seating area, still hearing slight giggles from the other ladies and hearing more protests from the woman who believes dogs shouldn't be allowed wherever she is. He was a nice gentleman and asked a lot of questions about my past visual history (which isn't good) and he performed some basic visual field tests. I'm so tired of having to look at someone's nose and tell them when I can see their fingers and how many they're holding up. I could almost give lessons on how to fake it because they all use the same pattern and the same number of fingers on each test. But, I'm desperate for answers and I tried really hard to stare at his nose and not look around for his fingers and made myself wait until I could actually see them before answering. I didn't get some of them right. Sometimes I thought there was only one but he was actually holding two. That was depressing.
He said he wanted to do a specialized visual field test that would better determine my peripheral vision. I asked if it meant sticking my head into the large, white, fish-bowl like structure and clicking when I saw dots of light appear on it and he said it was. I sighed because I knew it was going to be another one of the same tests I'd just done back in January and in February. I told him I'd had those tests before and even referred him to the large stack of papers I was given that had their results. He said he wanted to do this "different" version because it worked more on my peripheral vision instead of my entire field of vision. I walked back to the waiting area and blindly tried to find an empty seat FAR away from the woman who was still upset from our previous encounter.
The doctor's technician came and got me and we went to do the test. The difference between this test and the others I'd taken was that she manually controlled the dot of light and I had a washer in my hand and was supposed to tap it on the table when I could see the light. She kept reminding me to tap the washer and I said that when she turned the light on I would. We both realized that she was using a light too small and faint for me to see. So, she changed the size and intensity of the light often and I clicked the washer on the table whenever I could see the dot. It's very hard to keep yourself from looking around in the dome because you want to see the light or verify that you saw what you thought you saw. When the test is done by the computer, it registers if you look away from the target area. This one didn't and I hope I did it correctly. One bad thing about it was that my eyes were dilated and the bright lights kept creating shadows that made it harder to see each new light. Like when you stare at the sun or have a flashlight shown in your eyes and then you can't get that annoying spot out of your vision? Yup, it's like that but with dozens of those spots and new ones being created every second.
I finished the test and was led back to the seating area. This time I wasn't seated near the lady who hated dogs but ended up next to a family that thought Celeste was for show-and-tell. They wanted to pet her but weren't sure if I would let them (I could overhear this conversation as they thought they were whispering but also believed she was a guide dog which would automatically make me blind and deaf) and were quite shocked when I looked at them and told them they couldn't. Then they wanted to ask me why I had her if I could see and what my medical condition was. No questions about her and what she does -- just very personal questions about me and my history. I was very pleased that the doctor called me back to his exam room so I could get away from them.
I put Celeste back into the corner of the room and sat down to await the result and find out what is causing all of my problems. He said that I did well on the test and actually did better than he thought I would and that it all must be in my head. My jaw dropped when I heard this. I explained calmly (because by this point I was so stunned at what I'd just heard repeated for the umpteenth time that I wanted to scream) that ever since I was 19 and started having to wear bifocals and was first diagnosed with lattice degeneration that I've been hearing that "it's all in my head." I asked him why I can't see at night unless something is brightly illuminated. He said he didn't know but that if I was worried about it and was afraid to drive at night to not do it. I asked him why I'm having problems seeing items in my visual periphery and why my vision can't be corrected to better than 20/50. He said he didn't know but that his specialized test (done by a human, not a computer, remember) said I should be fine. I then asked again why even during the daytime when I'm driving I can't read the road signs and have to guess at what they're saying and that I use my GPS everywhere I go because it sits closer to me and I can read the street names on it because I can't read the road signs. Again, he said he didn't know but that if I was concerned about driving I shouldn't do it. I asked him if there were any answers he could give me and he said that when I went back to my glaucoma specialist that I should tell him all of this.
What??? By now I was between numb and furious and those two feelings kept changing back-and-forth quickly within me. I told him that I wasn't going to be seeing the glaucoma specialist anymore because I don't have glaucoma and that's why I was referred to the retinal specialist who looked at my eyes and said he couldn't do anything for me either. The doctor said that the retinal specialist (who is a part of the same practice, remember) wasn't known for taking very good notes and didn't really send much info to go on regarding what he thought about my eyes.
I thought I was going to scream. Really scream. I could not believe that I was hearing the same old line -- "It's all in your head." I even told him that if it was "in my head" and I was making it up I could most certainly think of a lot of better things to dream-up than this.
He finally decided that I need to have an MRI and an ERG (electroretinogram -- basically a big word for a test to determine which parts of my retina actually work) because I could be one of the few with normal-looking eyes but who actually has a problem. Normal? When I was in my early-twenties I had a doctor looking at retinal photos who thought he'd entered the wrong room because I was sitting there and he said that the photos looked like the retinas of an 80-year-old. But, at least now he'd decided that the big tests (which is the whole reason I was referred there) needed to be done. But he couldn't do them. Not that day, anyway. The person who ran the ERG machine was out and I'd have to come back.
After three hours in the doctor's office, I went home with nothing. I was told that the purpose of that visit was for me to have the MRI and ERG and figure out what was wrong and to expect to be there at a minimum of three hours for all of it. Husband took the whole day off work so that he could drive me there and back and hopefully get some answers. Nope. Nothing. The doctor's office is supposed to call me back today (maybe) to schedule another appointment for the tests I was expecting to have done yesterday.
When we were in the elevator of the parking garage and finally had some privacy I told Husband what the doctor had said, followed by a sharp expletive that I won't reprint here. I'd stamped my foot and said it loud enough without realizing that we were arriving at the level where we'd parked that I startled someone waiting to use the elevator. I apologized and we mad our way to the car. I cried on the way home. Husband is very understanding and has been constantly reminding me that whatever is wrong we'll deal with and that he'll always be there to help take care of me. I thanked him again and again but couldn't stop crying because I was so frustrated. I'd just been told the exact same thing by a doctor -- supposedly one of the best in the field nationwide (and will probably cost me a fortune) -- that I'd been told over and over again.
Today both Celeste and Harley can tell I'm upset. I'm sitting and waiting for a phone call that may or may not come to schedule an appointment for me to go all the way back and maybe, just maybe, finally get some concrete information. Something....anything.....information so I don't have to keep my life on pause while I'm worried just what I'll do as this continues to worsen and worry about what my last vision could be.
So, there you have it. Either I'm going blind from a mysterious cause that no one can diagnose or I'm bat-crap crazy and my brain is telling me I can't see things that I really can, which is an incredibly stupid thing for it to do since I need my vision to continue designing for the theatre (which I enjoy) and, more importantly, so I can work to pay-off all the bills I'm racking-up (which isn't as enjoyable but needs to be done). Oh well....I guess the standard "SSDD" (I'll let you look up what that usually stands for) idiom is certainly alive and well in my world.
Let's catch everyone up in the ongoing saga. A few posts back I related the story of what's been happening recently regarding my vision and the lack thereof. I've seen my optometrist; been referred to a glaucoma specialist; been referred to a retinal specialist; have had multiple versions of two different tests taken at each appointment; and was finally being referred to a neuro-ophthalmologist at a large, prestigious college/hospital across the state from me in order to determine what in the heck is happening. Yesterday, Husband and I drove three hours so I could have the scans and exams needed to identify the problem. I'd been advised that it would take a minimum of three hours for everything and readied myself for being shoved into large machines to determine what, if anything, is in there with my eyes and my brain that could be causing the problem.
After arriving at the doctor's office, I was quickly ushered back to a room where a technician asked me a lot of questions about my past medical history and asked me to read letters on the eye chart with my glasses on because my new prescription isn't correcting me to 20/20 (which is what got this whole thing started). She then had me stare at a notepad with a grid on it and asked me to describe what the lines looked like. With one eye I could only see half of the grid and with the other it looked like the lines were wavy and my brain was trying to make sense of it and I started seeing boxes "popping-up" from the page. She looked at me and scribbled notes on her paper. She gave me a color-vision test, which I'm pretty sure I passed easily other than perhaps mistaking a "6" for an "8" because those dots are so small. She asked me more questions, dilated my eyes, and checked the pressure inside of them. It was normal, as I could have told her. In fact, it was lower than it's been in the past few exams.
Then, and here's where I started to get irritated, she asked me why I was there. I told her it was because I was referred by a retinal specialist who said he couldn't help me because a glaucoma specialist said I didn't have glaucoma and that I should see said retinal specialist and that his office was to have emailed my files to this doctor who is part of the same practice and if they needed the files they could go down the hallway to get them. She nodded and wrote more information down on her paper and finally looked in the computer and found the notes from the retinal specialist. She asked me to go out into the smaller waiting room and wait for the doctor.
Celeste was with me (of course) and we made our way to a small seating area to wait. Upon arriving at the seating area, a large African-American woman began to jump up-and-down and grab everything she owned and kept repeating, "It's a dog! It's a dog!" Great....the last thing I needed....someone to cause a scene because my service dog is with me and they don't like them. I calmly replied to the lady that, yes, she is a dog but that she's a trained service dog and would not bother her. The woman continued to try to find a seat -- any seat -- near where her stuff was but not close to us. She nearly sat on two other ladies patiently waiting their turn or for someone who was being seen. She continued to protest loudly that she didn't like dogs and that there was a dog near her and she didn't like it. I had already scanned the room with what vision I had after my eyes were fully dilated and saw no other vacant seats except the one I chose which also gave Celeste a small area to lay down so that should would be out of the main flow of traffic. I sat down and said, in as polite of a voice as I could muster by this time, that Celeste would not come near her and would stay under my seat by my feet. This did nothing to appease the woman who began to tell me that I couldn't sit with the dog and continued to make a scene. Finally, and I know I shouldn't have, I replied, "Look! If you'd sit down and shut up, she wouldn't pay any attention to you because she is trained to keep her focus on me! Your tantrum is actually putting me in danger because she thinks you could be a threat and is now not paying attention to me as she is supposed to. Be quiet and don't look at her!" The other ladies in the seating area giggled under their breath but I know it wasn't the most polite thing to do. The woman sat down and tried to become one with the arm of the chair farthest from us and Celeste quickly crossed her front paws and put her head down to rest.
The doctor soon called me to come back and be seen and Celeste and I left the seating area, still hearing slight giggles from the other ladies and hearing more protests from the woman who believes dogs shouldn't be allowed wherever she is. He was a nice gentleman and asked a lot of questions about my past visual history (which isn't good) and he performed some basic visual field tests. I'm so tired of having to look at someone's nose and tell them when I can see their fingers and how many they're holding up. I could almost give lessons on how to fake it because they all use the same pattern and the same number of fingers on each test. But, I'm desperate for answers and I tried really hard to stare at his nose and not look around for his fingers and made myself wait until I could actually see them before answering. I didn't get some of them right. Sometimes I thought there was only one but he was actually holding two. That was depressing.
He said he wanted to do a specialized visual field test that would better determine my peripheral vision. I asked if it meant sticking my head into the large, white, fish-bowl like structure and clicking when I saw dots of light appear on it and he said it was. I sighed because I knew it was going to be another one of the same tests I'd just done back in January and in February. I told him I'd had those tests before and even referred him to the large stack of papers I was given that had their results. He said he wanted to do this "different" version because it worked more on my peripheral vision instead of my entire field of vision. I walked back to the waiting area and blindly tried to find an empty seat FAR away from the woman who was still upset from our previous encounter.
The doctor's technician came and got me and we went to do the test. The difference between this test and the others I'd taken was that she manually controlled the dot of light and I had a washer in my hand and was supposed to tap it on the table when I could see the light. She kept reminding me to tap the washer and I said that when she turned the light on I would. We both realized that she was using a light too small and faint for me to see. So, she changed the size and intensity of the light often and I clicked the washer on the table whenever I could see the dot. It's very hard to keep yourself from looking around in the dome because you want to see the light or verify that you saw what you thought you saw. When the test is done by the computer, it registers if you look away from the target area. This one didn't and I hope I did it correctly. One bad thing about it was that my eyes were dilated and the bright lights kept creating shadows that made it harder to see each new light. Like when you stare at the sun or have a flashlight shown in your eyes and then you can't get that annoying spot out of your vision? Yup, it's like that but with dozens of those spots and new ones being created every second.
I finished the test and was led back to the seating area. This time I wasn't seated near the lady who hated dogs but ended up next to a family that thought Celeste was for show-and-tell. They wanted to pet her but weren't sure if I would let them (I could overhear this conversation as they thought they were whispering but also believed she was a guide dog which would automatically make me blind and deaf) and were quite shocked when I looked at them and told them they couldn't. Then they wanted to ask me why I had her if I could see and what my medical condition was. No questions about her and what she does -- just very personal questions about me and my history. I was very pleased that the doctor called me back to his exam room so I could get away from them.
I put Celeste back into the corner of the room and sat down to await the result and find out what is causing all of my problems. He said that I did well on the test and actually did better than he thought I would and that it all must be in my head. My jaw dropped when I heard this. I explained calmly (because by this point I was so stunned at what I'd just heard repeated for the umpteenth time that I wanted to scream) that ever since I was 19 and started having to wear bifocals and was first diagnosed with lattice degeneration that I've been hearing that "it's all in my head." I asked him why I can't see at night unless something is brightly illuminated. He said he didn't know but that if I was worried about it and was afraid to drive at night to not do it. I asked him why I'm having problems seeing items in my visual periphery and why my vision can't be corrected to better than 20/50. He said he didn't know but that his specialized test (done by a human, not a computer, remember) said I should be fine. I then asked again why even during the daytime when I'm driving I can't read the road signs and have to guess at what they're saying and that I use my GPS everywhere I go because it sits closer to me and I can read the street names on it because I can't read the road signs. Again, he said he didn't know but that if I was concerned about driving I shouldn't do it. I asked him if there were any answers he could give me and he said that when I went back to my glaucoma specialist that I should tell him all of this.
What??? By now I was between numb and furious and those two feelings kept changing back-and-forth quickly within me. I told him that I wasn't going to be seeing the glaucoma specialist anymore because I don't have glaucoma and that's why I was referred to the retinal specialist who looked at my eyes and said he couldn't do anything for me either. The doctor said that the retinal specialist (who is a part of the same practice, remember) wasn't known for taking very good notes and didn't really send much info to go on regarding what he thought about my eyes.
I thought I was going to scream. Really scream. I could not believe that I was hearing the same old line -- "It's all in your head." I even told him that if it was "in my head" and I was making it up I could most certainly think of a lot of better things to dream-up than this.
He finally decided that I need to have an MRI and an ERG (electroretinogram -- basically a big word for a test to determine which parts of my retina actually work) because I could be one of the few with normal-looking eyes but who actually has a problem. Normal? When I was in my early-twenties I had a doctor looking at retinal photos who thought he'd entered the wrong room because I was sitting there and he said that the photos looked like the retinas of an 80-year-old. But, at least now he'd decided that the big tests (which is the whole reason I was referred there) needed to be done. But he couldn't do them. Not that day, anyway. The person who ran the ERG machine was out and I'd have to come back.
After three hours in the doctor's office, I went home with nothing. I was told that the purpose of that visit was for me to have the MRI and ERG and figure out what was wrong and to expect to be there at a minimum of three hours for all of it. Husband took the whole day off work so that he could drive me there and back and hopefully get some answers. Nope. Nothing. The doctor's office is supposed to call me back today (maybe) to schedule another appointment for the tests I was expecting to have done yesterday.
When we were in the elevator of the parking garage and finally had some privacy I told Husband what the doctor had said, followed by a sharp expletive that I won't reprint here. I'd stamped my foot and said it loud enough without realizing that we were arriving at the level where we'd parked that I startled someone waiting to use the elevator. I apologized and we mad our way to the car. I cried on the way home. Husband is very understanding and has been constantly reminding me that whatever is wrong we'll deal with and that he'll always be there to help take care of me. I thanked him again and again but couldn't stop crying because I was so frustrated. I'd just been told the exact same thing by a doctor -- supposedly one of the best in the field nationwide (and will probably cost me a fortune) -- that I'd been told over and over again.
Today both Celeste and Harley can tell I'm upset. I'm sitting and waiting for a phone call that may or may not come to schedule an appointment for me to go all the way back and maybe, just maybe, finally get some concrete information. Something....anything.....information so I don't have to keep my life on pause while I'm worried just what I'll do as this continues to worsen and worry about what my last vision could be.
So, there you have it. Either I'm going blind from a mysterious cause that no one can diagnose or I'm bat-crap crazy and my brain is telling me I can't see things that I really can, which is an incredibly stupid thing for it to do since I need my vision to continue designing for the theatre (which I enjoy) and, more importantly, so I can work to pay-off all the bills I'm racking-up (which isn't as enjoyable but needs to be done). Oh well....I guess the standard "SSDD" (I'll let you look up what that usually stands for) idiom is certainly alive and well in my world.
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Wednesday, March 7, 2012
Same info, different day
Hello dear readers! Have been out-of-town all day at a doctor's appointment. Not very happy about it. And can't really see well enough at the moment to type much. So, I'll be ranting about it tomorrow. Sorry for the delay, but it might be best if I don't type what I'm thinking right now 'cause I've always rated this blog at least PG-13.
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to be continued
Thursday, February 9, 2012
Political rant for the day (prospects for more are good).
I've been trying to stay out of the political fray in this blog because I know there are TONS of bloggers who are better at it (and many who are not), more popular, and people like a variety of subjects to read. But today, I've just had it. I've had it with the media and the taking heads of the national and local news stations yammering about certain topics while completely ignoring others and I'm tired of it. Not just tired; sick and tired. And everyone knows that's the worst tired to be. So, for today, I'm gonna rant 'cause it's my blog and I'll rant if I want.
First order of business in this rant -- there were two caucuses and a primary this week. Just two days ago on this past Tuesday for those who didn't know. They were held in the states of Colorado, Minnesota, and Missouri, respectively. Rick Santorum won the majority of votes in all three contests. However, Mitt Romney, days before the Missouri primary, said that Missourians were having a "beauty contest" instead of a primary because their votes "wouldn't count." Hmmm....clever way Mitt to get people to not turn-out to complete their civic duty and participate in a right given to them by the government in a state where you weren't very popular.
For those who kept saying the Republican Party was wasting millions of dollars in having a Primary that "wouldn't count" and that it was incredibly irresponsible on the part of Missouri to allow it -- let's look at the law. The State of Missouri has a law that sets the date of the primary and for 2012 it was set, by that law, for February 7th. The law was enacted when other states had moved their primary dates forward and Missouri wanted its primary to still be "relevant" in picking the candidates for president, regardless of political party. The Republican National Committee (RNC) set the rules that required all states with the exception of Iowa, New Hampshire, Nevada, and South Carolina to wait until March 6th to have their "contests" or risk losing having of the delegates for their state when it comes time for the RNC Convention later this year. That rule was enacted after Missouri and other states had changed their primary laws. Because the law is on the books in Missouri, the State legislature attempted to pass a resolution to move the date so that the primary would be in "compliance with the RNC" and that they wouldn't have to risk losing delegates. Whether you believe the statements that the Missouri Legislature just didn't act in time or that the Governor (a Democrat) helped to block the change of date in order to cause the problem, the fact remains that a change couldn't be passed and the State of Missouri was required by law to hold the primary last Tuesday.
So, of course all of the Republican candidates who weren't going to have a great showing in Missouri decided to make fun of the predicament the people of the Show-Me-State were in or, in the case of Newt Gingrich, didn't appear on the ballot at all. What people are conveniently forgetting is that the primary wasn't only for Republicans. Democratic candidates and even a Libertarian candidate appeared on their respective party's ballots in Missouri. Even Republican candidates who have long since cancelled their campaigns appeared and some even got votes! Everyone just assumes that President Obama will receive the nomination again for the Democratic Party, but technically the votes cast by any Democrats towards the choosing of a candidate would count since the Democratic National Committee (DNC) didn't make any changes to their rules/regulations regarding primary dates. So the delegates selected by the primary in Missouri for the Democrats will count. Only the Republicans have to assemble again on March 17th in a caucus to select the delegates for the RNC Convention. And, any registered voter in the state who declares themself to be a Republican can participate in the caucus -- so even though the popular vote was for Santorum, the caucus vote could change.
But to say that "Missourians' votes didn't count" is just wrong. The people of Missouri who went to vote weren't there just for a presidential nominating primary. Many cities, towns, counties, and municipalities had issues on the ballot that needed votes. Many, regardless of their political affiliation, went to vote on some controversial issues. Those votes most certainly counted. The decisions they made that day on those amendments and/or referendums impact the lives of Missourians very much and those who were dissuaded from voting by presidential candidates saying that their votes "wouldn't count" were completely misled. And they were misled by the people who want to be the next leader of the country! How despicable is that? It's like waving a flag that says, "Yes! You can trust me because I'm an honest leader but only when it suits me and I really don't feel the need to waste my time on you!" Any candidate who would directly or indirectly try to influence a registered voter to NOT vote should NOT be allowed to be a candidate for president (in my opinion, for whatever that's worth).
The second order of business in this rant is my complete frustration and disgust with the media, especially the national media, to continue their blackout of Dr. Ron Paul's candidacy. And don't act like you've not noticed it -- even major networks like CNN have admitted that they've been purposefully non-reporting anything about his campaign. Just watch the debates -- who gets pushed to the side of the group and not asked very many questions? And it's incredibly stupid for the media to do that (1) when there are questions for which Dr. Paul is more than competent to answer (medical issues come to mind) and (2) when the public is watching closely to see just how biased the network really is. And regardless if you're a Republican, Democrat, Libertarian, or any other party affiliation, you should be demanding that they treat Dr. Paul with the same courtesy they do the other candidates. Last night I was watching the NBC Nightly News and it was said, loud and clear, that there were three Republican candidates. Who dropped out?? Romney? Santorum? Gingrich? If they're saying that there are only three Republicans left in the fight, then it had to be one of them because Ron Paul has said he'll stay until it's "mathematically impossible" for him to win enough delegates and that time certainly hasn't come yet.
Is this a campaign speech in favor of Ron Paul? Not necessarily. I have the candidate in mind that I would like to win. I'm incredibly glad to see many of the candidates drop-out of the race and feel some of them took way too long to do so. However, I certainly know that if I were running for office that I would want to have the same coverage that the other candidates receive. I'm not saying that every single candidate should get 24/7 news feeds and you can usually tell who is and who isn't really in the race for the long-haul and committed to actually getting elected. If I didn't have enough money to put as many commercials on television as the other candidates, that would be my issue and I'd have to really work hard on fundraising. But to give a speech somewhere or participate in a televised debate and be basically ignored while the media fawns all over the "big name" (i.e. "big money") candidates is just not fair. And to be completely omitted by a national news program when you're (1) still on the ballot, (2) still campaigning, (3) haven't stopped your campaign, and (4) are the number-one recipient of campaign contributions from active duty service members and their families is offensive.
Children are taught in school that anyone (who is a native-born citizen of the United States over the age of 35 and has lived in the US for over 14 years) can grow up to become the president. The media is teaching them otherwise. And since the American people are becoming more and more "educated" by mass media and turning into sheep that follow only what the famous and wealthy have to say, I guess I shouldn't say I'm surprised at this turn of events. It still ticks me off royally, but I shouldn't be surprised. What I am doing, though, is educating my children in their political rights and making sure that both (only one is eligible to vote at the moment, though) understand that it is a civic duty; it is a right given as part of their citizenship in this nation; and that if they decide they don't want to or don't care about voting, then they really have no right to complain when things don't go their way.
First order of business in this rant -- there were two caucuses and a primary this week. Just two days ago on this past Tuesday for those who didn't know. They were held in the states of Colorado, Minnesota, and Missouri, respectively. Rick Santorum won the majority of votes in all three contests. However, Mitt Romney, days before the Missouri primary, said that Missourians were having a "beauty contest" instead of a primary because their votes "wouldn't count." Hmmm....clever way Mitt to get people to not turn-out to complete their civic duty and participate in a right given to them by the government in a state where you weren't very popular.
For those who kept saying the Republican Party was wasting millions of dollars in having a Primary that "wouldn't count" and that it was incredibly irresponsible on the part of Missouri to allow it -- let's look at the law. The State of Missouri has a law that sets the date of the primary and for 2012 it was set, by that law, for February 7th. The law was enacted when other states had moved their primary dates forward and Missouri wanted its primary to still be "relevant" in picking the candidates for president, regardless of political party. The Republican National Committee (RNC) set the rules that required all states with the exception of Iowa, New Hampshire, Nevada, and South Carolina to wait until March 6th to have their "contests" or risk losing having of the delegates for their state when it comes time for the RNC Convention later this year. That rule was enacted after Missouri and other states had changed their primary laws. Because the law is on the books in Missouri, the State legislature attempted to pass a resolution to move the date so that the primary would be in "compliance with the RNC" and that they wouldn't have to risk losing delegates. Whether you believe the statements that the Missouri Legislature just didn't act in time or that the Governor (a Democrat) helped to block the change of date in order to cause the problem, the fact remains that a change couldn't be passed and the State of Missouri was required by law to hold the primary last Tuesday.
So, of course all of the Republican candidates who weren't going to have a great showing in Missouri decided to make fun of the predicament the people of the Show-Me-State were in or, in the case of Newt Gingrich, didn't appear on the ballot at all. What people are conveniently forgetting is that the primary wasn't only for Republicans. Democratic candidates and even a Libertarian candidate appeared on their respective party's ballots in Missouri. Even Republican candidates who have long since cancelled their campaigns appeared and some even got votes! Everyone just assumes that President Obama will receive the nomination again for the Democratic Party, but technically the votes cast by any Democrats towards the choosing of a candidate would count since the Democratic National Committee (DNC) didn't make any changes to their rules/regulations regarding primary dates. So the delegates selected by the primary in Missouri for the Democrats will count. Only the Republicans have to assemble again on March 17th in a caucus to select the delegates for the RNC Convention. And, any registered voter in the state who declares themself to be a Republican can participate in the caucus -- so even though the popular vote was for Santorum, the caucus vote could change.
But to say that "Missourians' votes didn't count" is just wrong. The people of Missouri who went to vote weren't there just for a presidential nominating primary. Many cities, towns, counties, and municipalities had issues on the ballot that needed votes. Many, regardless of their political affiliation, went to vote on some controversial issues. Those votes most certainly counted. The decisions they made that day on those amendments and/or referendums impact the lives of Missourians very much and those who were dissuaded from voting by presidential candidates saying that their votes "wouldn't count" were completely misled. And they were misled by the people who want to be the next leader of the country! How despicable is that? It's like waving a flag that says, "Yes! You can trust me because I'm an honest leader but only when it suits me and I really don't feel the need to waste my time on you!" Any candidate who would directly or indirectly try to influence a registered voter to NOT vote should NOT be allowed to be a candidate for president (in my opinion, for whatever that's worth).
The second order of business in this rant is my complete frustration and disgust with the media, especially the national media, to continue their blackout of Dr. Ron Paul's candidacy. And don't act like you've not noticed it -- even major networks like CNN have admitted that they've been purposefully non-reporting anything about his campaign. Just watch the debates -- who gets pushed to the side of the group and not asked very many questions? And it's incredibly stupid for the media to do that (1) when there are questions for which Dr. Paul is more than competent to answer (medical issues come to mind) and (2) when the public is watching closely to see just how biased the network really is. And regardless if you're a Republican, Democrat, Libertarian, or any other party affiliation, you should be demanding that they treat Dr. Paul with the same courtesy they do the other candidates. Last night I was watching the NBC Nightly News and it was said, loud and clear, that there were three Republican candidates. Who dropped out?? Romney? Santorum? Gingrich? If they're saying that there are only three Republicans left in the fight, then it had to be one of them because Ron Paul has said he'll stay until it's "mathematically impossible" for him to win enough delegates and that time certainly hasn't come yet.
Is this a campaign speech in favor of Ron Paul? Not necessarily. I have the candidate in mind that I would like to win. I'm incredibly glad to see many of the candidates drop-out of the race and feel some of them took way too long to do so. However, I certainly know that if I were running for office that I would want to have the same coverage that the other candidates receive. I'm not saying that every single candidate should get 24/7 news feeds and you can usually tell who is and who isn't really in the race for the long-haul and committed to actually getting elected. If I didn't have enough money to put as many commercials on television as the other candidates, that would be my issue and I'd have to really work hard on fundraising. But to give a speech somewhere or participate in a televised debate and be basically ignored while the media fawns all over the "big name" (i.e. "big money") candidates is just not fair. And to be completely omitted by a national news program when you're (1) still on the ballot, (2) still campaigning, (3) haven't stopped your campaign, and (4) are the number-one recipient of campaign contributions from active duty service members and their families is offensive.
Children are taught in school that anyone (who is a native-born citizen of the United States over the age of 35 and has lived in the US for over 14 years) can grow up to become the president. The media is teaching them otherwise. And since the American people are becoming more and more "educated" by mass media and turning into sheep that follow only what the famous and wealthy have to say, I guess I shouldn't say I'm surprised at this turn of events. It still ticks me off royally, but I shouldn't be surprised. What I am doing, though, is educating my children in their political rights and making sure that both (only one is eligible to vote at the moment, though) understand that it is a civic duty; it is a right given as part of their citizenship in this nation; and that if they decide they don't want to or don't care about voting, then they really have no right to complain when things don't go their way.
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Sunday, February 5, 2012
"We" are still in charge today!
He, he, he...."we" are still in control today!! Kept her in bed all morning and into the afternoon. As a matter of fact, "we" probably wouldn't have begun a post today if she'd not had really weird dreams (Not our fault! Honest!) and the family wanted to order pizza online. Plus, she's not staying in bed when the Super Bowl is going to be on TV!
So, maybe tomorrow you'll get something really worth reading. Today "we" just have weird dreams and a phone call from one of the lead actors in the play calling to say they can no longer participate. So, "we" will be busy trying to figure that issue out the rest of the night.
Crap....Celeste is back and doesn't look happy about her sitting up on the couch typing. Gotta go!
So, maybe tomorrow you'll get something really worth reading. Today "we" just have weird dreams and a phone call from one of the lead actors in the play calling to say they can no longer participate. So, "we" will be busy trying to figure that issue out the rest of the night.
Crap....Celeste is back and doesn't look happy about her sitting up on the couch typing. Gotta go!
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Saturday, February 4, 2012
Feeling like death-on-toast lets "voices" speak.
Yay!! Jackie's feeling under the weather today, so we get to write!!
Who are "we," you ask? "We" are the "voices" from her head, and we're all trying to figure out what to post.
There are lots of things going on -- rehearsals for the Community Theatre play; getting the new fence constructed; dealing with the new neighbors behind the house with a pack of dogs that won't shut up -- and that's just the short list!
However, she's a smart cookie and has taken her medication for the day plus a flu-fighting kicker. "We" are still busy with our lists, arguments, worries, etc. But she's got a comfy couch and blankets to curl up with which allows sleep to shut us up for a little bit.
This post is just being placed here 'cause "we" convinced her that she could do this and mistakenly promised that as long as she would be able to type somewhat legibly, "we" would help keep the posts coming. "We" forgot that the laptop works in the bedroom, too....an oversight we stupidly made.
Ooh!! Puppy Bowl advertisement on TV!! That's always cute (though Jackie will deny it) but it won't be as much fun as the Super Bowl tomorrow. Gotta make sure she's ready for the game tomorrow. Youngest Son is practicing his trumpet. Husband already did grocery shopping and dealt with the dogs when they barked at someone coming up the drive unannounced. Now he's doing laundry. Harley is laying the in the floor and Celeste is staring at "us" like it's a mortal sin that "we" are posting online. And Cat is....well....she's being Cat and staying away from everyone.
And now Celeste is really starting to stare so "we" are going to go for now. Nice doggie....putting the laptop away....
Who are "we," you ask? "We" are the "voices" from her head, and we're all trying to figure out what to post.
There are lots of things going on -- rehearsals for the Community Theatre play; getting the new fence constructed; dealing with the new neighbors behind the house with a pack of dogs that won't shut up -- and that's just the short list!
However, she's a smart cookie and has taken her medication for the day plus a flu-fighting kicker. "We" are still busy with our lists, arguments, worries, etc. But she's got a comfy couch and blankets to curl up with which allows sleep to shut us up for a little bit.
This post is just being placed here 'cause "we" convinced her that she could do this and mistakenly promised that as long as she would be able to type somewhat legibly, "we" would help keep the posts coming. "We" forgot that the laptop works in the bedroom, too....an oversight we stupidly made.
Ooh!! Puppy Bowl advertisement on TV!! That's always cute (though Jackie will deny it) but it won't be as much fun as the Super Bowl tomorrow. Gotta make sure she's ready for the game tomorrow. Youngest Son is practicing his trumpet. Husband already did grocery shopping and dealt with the dogs when they barked at someone coming up the drive unannounced. Now he's doing laundry. Harley is laying the in the floor and Celeste is staring at "us" like it's a mortal sin that "we" are posting online. And Cat is....well....she's being Cat and staying away from everyone.
And now Celeste is really starting to stare so "we" are going to go for now. Nice doggie....putting the laptop away....
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